Select a Syndrome or Condition
Activ Foundation. A better life... Parent Portal
legend

Syndromes & Conditions - Prader-Willi Syndrome

WEBSITES


Disability online : Prader-Willi syndrome Department of Human Services, Vic. [2014]

This provides a range of information for people with Prader-Willi syndrome, their families and carers. It outlines symptoms, causes, associated problems and diagnosis, treatment options, specialist care and sources of help. Links to a related article on obesity and hormones.



International Prader-Willi Syndrome Organization [2014]

This website provides information about the syndrome, details on publications and research reports, access to an online newsletter, upcoming conferences, and contact details for members in many different countries.



Prader-Willi syndrome Contact a Family [2014]

Provides a good basic description of the syndrome and the contact details for the UK support group.



The Prader-Willi Syndrome Association (PWSA) of Victoria -- Melbourne: [2014]

Includes information about Prader-Willi syndrome; new diagnosis and an infant guide; teenagers and adults; a member's library; information for professionals; and links to further resources and PWA associations around the world.



Prader-Willi Syndrome Association (UK) PWSA (UK) [2014]

Website of the Prader-Willi Syndrome Association in the UK, this site provides information on a wide range of topcics related to Prader-Willi syndrome. for parents, family members, professionals and people with PWS. It includes links to downloadable resources as well as publications for purchase.



Prader-Willi Syndrome Association (USA) PRADER-WILLI SYNDROME ASSOCIATION (USA) [2014]

A comprehensive website that providing information for parents, family members, teachers, researchers, and professional practitioners.